There is a kind of grief many people never talk about, ambiguous loss, the heartbreak of watching someone you love slip away mentally or emotionally while their body remains. It’s a grief rooted in hope, confusion, shattered expectations, and deep powerlessness. I’m not sharing this for pity or attention. I’m sharing it to raise awareness — for myself, and for other mothers who may be suffering in silence. Our silence keeps us sick. And I want to heal.
💬 “Pride goes before a fall.” 🛑 And HIPAA has tied the hands of parents across this country.
Last week, I called Treatment Advocacy Center in Alexandria, VA. That’s when I first heard the term ambiguous grief [Editor’s note: The correct term, as developed by Dr. Pauline Boss, is ambiguous loss. The storyteller’s words are preserved here as originally expressed. TAC teaches and uses the correct term ambiguous loss. Many caregivers understandably make this mistake, as the lived experience of heartache can blur the distinction].
It gave a name to what I’ve been carrying for years. I lost my son to an opioid overdose in 2005, a time when people weren’t talking about addiction the way they do now. My younger son was a teenager then. Quiet. Struggling. I believe now he was on the autism spectrum and also had mild Tourette’s. He couldn’t express his grief over losing his brother. I tried to get him help. He fell into a catatonic depression. We saw multiple doctors. Some treatments helped briefly. He remained vulnerable — young, beautiful, and easy prey.
💔 That’s when wealthy older men entered his life. 💉 They gave him crystal meth. 🎭 They pulled him into a world of “Party & Play” (PNP) — sex, drugs, exploitation. That was 20 years ago. Since then, it’s been a devastating cycle of: Arrests, Psychotic breaks, ER visits, Assaults, Prisons, Rapes, Exploitation, Being filmed while high, Hospital discharges with “rights intact”.
Yes, I was called a “helicopter mom.” Yes, I used LIFE360 to track him. Yes, I pulled him out of homes filled with drugs and predators. I went to the DEA. I contacted lawyers, judges, ERs. I reached out to LGBTQ+ organizations, warning them that predatory men are destroying vulnerable young gay males with crystal meth for their own gratification. Some of these boys have died by suicide. Others, like my son, have completely lost themselves.
His first arrest in 2009 was the beginning. He was beaten by jail staff. Humiliated. Left in his own urine. The local news reported on it. From there, it only got worse. ER after ER. Discharged over and over. Doctors called it “anxiety”, not meth-induced psychosis.
He was dying right in front of me, but his rights were more protected than his life.
During COVID, sheriffs came with guns drawn. He was jailed with no showers, no hygiene, and suffered a full-blown psychotic break. When he finally got to the hospital, a doctor asked me: 🗣 “Why hasn’t he gotten help?” 💔 I said, “I tried. Over and over again. But the system kept releasing him, with his rights intact.” Eventually, he was stabilized on medication. He was quiet. Gentle. I thought we had turned a corner. But then Abilify was stopped… and no antipsychotic was prescribed in its place. Within six weeks, he spiraled into psychosis: Grandiosity, Violence, Tangents, Homicidal rants, Anosognosia (inability to see he’s ill). He was sent back to the hospital, placed on the most violent unit, and has been in 4-point restraints more than 10 times. He calls me constantly — spewing threats, denying I’m his mom, saying he’ll kill me and the cats. His words, tone, and soul… are not him.
He has 3 new felonies. When stabilized, they’ll send him back to the same system that traumatized him. He has died with his rights intact. I am grieving a son who is still alive. Was it genetics? Was it meth? Was it trauma? 🧠 It was all of it. And it happened while every system meant to help him — failed. If you're a parent walking this same road: 🤝 I see you.
If you're a professional in healthcare, law, or mental health: 🙏 Please listen. We need systemic change. We need compassion. We need better answers than what we’re getting now. Because this kind of grief should never be invisible.
Each story is shared by someone impacted by untreated SMI,
lightly edited for clarity, never for meaning.
Do you have an ask? If you were sitting down with your legislator, how would you ask them to help you?
Everyone who has experienced this within the mental health system should barrage them with stories like this. Maybe our voices will be heard. The system is reactive and not proactive. They wait for someone to do real damage before they intervene. They always ask" where was the mother??" Well, we are right here begging for help!!
MAHA: You need to know my unique story. Please send an email to info@teamkennedy.com. President Trump: Go to White House and find contact him and send that way. I do not know the email.
HIPAA is tying the hands of parents. The CRITERIA for Admission is tying the hands as well.
We need more long-term beds. Anyone who has walked this path would agree. Those who have not walked this path may disagree.
