lived experience

I am sharing my experience because I know now that it is not unique.

For many years I lived with an untreated psychotic illness and severe lack of insight into my condition. During that time, my illness repeatedly intersected with the criminal justice system. I have been arrested, jailed, and tased during episodes of psychosis. Each time, the jails were informed that I had an underlying psychiatric condition, yet I was still processed through the jail system rather than transferred for medical care.

In several instances I remained in jail untreated until my release, at which point I sought care at a hospital. The system responded to a medical emergency with incarceration rather than treatment.

I have continued vulnerability to psychosis, but insight into the seriousness of my illness developed only recently. Lack of insight is a well-recognized feature of psychotic disorders, yet it is rarely understood by courts or systems responsible for responding to people in crisis.

Medication has helped stabilize my condition, but treatment itself can be complex. Many antipsychotic medications significantly affect dopamine systems that regulate motivation, energy, and cognition. These side effects can make adherence difficult and can complicate recovery. For many years I did not fully understand this balance, and the consequences were severe.

Another difficult reality is the legal pathway often presented to people whose illness leads to arrest. I was repeatedly advised that pursuing a Not Guilty by Reason of Insanity (NGRI) defense could result in commitment to a forensic psychiatric hospital. I was told this environment could be more destabilizing for me than the legal consequences of the charges themselves. Because of that, I never pursued NGRI and instead accepted reduced charges. Those charges remain on my criminal record and have affected my ability to obtain employment.

This creates a painful dilemma for people with severe mental illness: accept criminal penalties for actions that occurred during illness, or risk long-term commitment in a forensic system that may not provide the stability needed for recovery.

These realities are rarely discussed openly.

Today I remain medically vulnerable but stable and engaged in treatment. With the insight I have gained, I now use my voice to raise awareness about the intersection between severe mental illness and the justice system. I speak publicly, including through my professional writing and advocacy, because many people experiencing these conditions cannot speak for themselves while they are ill.

I am sharing multiple aspects of my story because they reflect systemic problems that affect many others: untreated psychosis, lack of recognition of anosognosia, incarceration instead of care, the difficult trade-offs surrounding NGRI, and the long-term consequences of criminal records for people whose actions occurred during medical crisis.

Psychosis is a medical emergency. When the system responds with jail instead of treatment, the result is not justice. It is a failure of care.

I am speaking now because these realities need to be understood if meaningful reform is ever going to occur.

*Each story is shared by someone impacted by untreated SMI, lightly edited for clarity, never for meaning.

2 Responses

  1. I am not able to adequately express my gratitude; having recently been discharged after my 4th hospitalization – as my injured brain continues to get worse.

    But your journey helps me know that I am not alone. Tackled – like a wild boar; 11 guards shoving my head into a mattress – better than concrete, which I know all too well…..

    The mal treatment can be horrific.

  2. This happened to me in 2011 in Florida. I spent over two months in jail, psychotic with no medication. The phrase “cruel and unusual punishment “ kept running through my head the whole time I was there.
    I now spend my time presenting inNAMI ‘s Crisis Intervention Program telling law enforcement my horrific experience and how to direct people dealing with mental health issues into treatment, not incarceration.
    That has helped me overcome the trauma of my experience.

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THE ASK

The author’s message for legislators:

First, create pathways for expungement of criminal records when arrests occur during documented medical crises, including severe mental illness and psychosis. When a person’s actions occur in the context of a medical emergency rather than criminal intent, a permanent criminal record becomes a continuing punishment for an illness. Those records often block employment, housing, and stability long after the medical crisis has passed.

Judges should have clear authority to expunge records in cases where medical evidence shows the behavior was driven by a serious health condition rather than criminal intent.

Second, there must be greater investment in psychiatric treatments that are easier for patients to tolerate long term. Many existing medications for psychotic disorders can significantly affect motivation, cognition, and energy due to their effects on dopamine systems. These side effects are a major reason people struggle to remain on medication consistently.

Improving treatment options is not simply a medical issue; it is also a public health and public safety issue. When treatments are more tolerable and sustainable, stability becomes far more achievable.

These stories aren’t for sympathy.
They are here to drive systemic change, one voice at a time.

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2 Responses

  1. I am not able to adequately express my gratitude; having recently been discharged after my 4th hospitalization – as my injured brain continues to get worse.

    But your journey helps me know that I am not alone. Tackled – like a wild boar; 11 guards shoving my head into a mattress – better than concrete, which I know all too well…..

    The mal treatment can be horrific.

  2. This happened to me in 2011 in Florida. I spent over two months in jail, psychotic with no medication. The phrase “cruel and unusual punishment “ kept running through my head the whole time I was there.
    I now spend my time presenting inNAMI ‘s Crisis Intervention Program telling law enforcement my horrific experience and how to direct people dealing with mental health issues into treatment, not incarceration.
    That has helped me overcome the trauma of my experience.

Leave a Reply

Your email address will not be published. Required fields are marked *