Feeling so defeated and exhausted. My mother has had a long history with schizophrenia. She had a manic episode and I as her legal guardian had to have her place in a psychiatric hospital.

I expressed not to adjust her meds from the get go (she has a history of getting so much worse when they do this) they need to first work on sleep. Abilify was working so good for her she was the best I’ve seen her in years. She was able to live independently with daily home health aid assistance just to help her when and if needed she’s 64 and falls a lot.

Anyways she spent 20 days in Ohio hospital for psychiatry. They would NOT listen to me and had her on 4 different meds while there lied to me and told me she was sleeping 9 hours and just rambles a little. She would not talk to me on the phone I express my concerns as I felt there is no way she is improving since she won’t even speak to me. I also expressed multiple times to stop adjusting medications which was ignored.

She gets discharged I come to pick her up and she is worse than what she went in. She didn’t want to get in my car she was actively hallucinating and kept opening my car door to jump out in the high way. I had to put her in the back with child lock on. I took her straight to the ER she spent 3 days on hold for another facility and didn’t sleep at all those three days.

She got accepted to haven behavioral health and I felt like they were actually listening to me and she was improving but I was only able to speak with social work who kept mentioning possible discharge dates. I expressed from previous hospitalizations after multiple medications being tried in a short span it takes 2 months or longer to get her stable she’s a really complex case and it’s not safe for her to go home since she LIVES ALONE. I couldn’t visit her and she again wouldn’t speak to me on the phone.

I finally start speaking with nurses and they inform me she slept one hour for two nights in a row and this is with social work wanting to discharge her the next day. That nurse bless her heart advocated and listened to me and discharge was pushed back another week. I follow up with the nurse again a few days later and she informs me she is sleeping 4-5 hours broken up, pacing, disorganized speech. I express my concerns with social work and her discharge gets pushed back.

Then out of no where I receive a voicemail Friday that they are discharging her Monday. I panic because there is just no way and call social work leave a voicemail and again express my concerns. I also called and spoke with the night nurse who was shocked that they told me they were discharging her and agreed that it would be a huge safety risk.

She told me she would email social work and ping the psychiatrist. Here it is the next morning Monday I missed the call from social worker at 10:30 I called back at lunch time and left a voicemail (I have two little girls at home with me so it’s hard for me to always be ready for a phone call) I did not hear anything at all. Got to her apartment to check her mail like I do every Monday and low and behold here she is getting out of a taxi and then completely strips naked and takes a BM in the middle on the road while screaming a 100 miles a minute not making any sense.

I’m so thankful that by the grace of god I so happened to be there when I was because she had no keys, no phone, she didn’t even have SHOES on just grippy socks.

I call social work and I’m extremely upset at this point. I’m her guardian and did not consent or even get to discuss discharge all I got was a brief voicemail that she’s going to be discharged on monday. No time frame, no contact to arrange for pickup. I call The social worker who raises her voice at me and says “this is your mother’s new baseline she was here for 19 days you have to accept it” and hung up on me. So here we are back in the ER and I am and emotional mess. I don’t think I can keep doing this anymore when the facilities don’t help and just push them out when they are clearly not ready. Update she is admitted to our local hospital for temporary nursing home placement who are supposedly capable for geriatric patients with psych issues. I’m nervous about it but it comes to her safety at this point. This way I can visit her everyday and know if it’s working or not.

Were originally from Florida and I’ve never had to fight and advocate so hard for her when anyone can look at her and see she is not stable to be out in the real world again while she’s living in a completely different one in her head. Florida always kept her a minimum of 60-90 days when she has an episode this bad and she comes out her self and ready to live life again.